Opting out of sharing your confidential patient information
If you do not want your patient data shared with NHS Digital, you can register a Type 1 Opt-out with your GP practice. You can register a Type 1 Opt-out at any time. You can also change your mind at any time and withdraw a Type 1 Opt-out.
Data sharing with NHS Digital will start on 1 July 2021.
If you have already registered a Type 1 Opt-out with your GP practice your data will not be shared with NHS Digital.
If you wish to register a Type 1 Opt-out with your GP practice before data sharing starts with NHS Digital, this should be done by returning this form to your GP practice by 23 June 2021 to allow time for processing it. If you have previously registered a Type 1 Opt-out and you would like to withdraw this, you can also use the form to do this. You can send the form by post or email to your GP practice or call 0300 3035678 for a form to be sent out to you.
Data Opt out form
If you register a Type 1 Opt-out after your patient data has already been shared with NHS Digital, no more of your data will be shared with NHS Digital. NHS Digital will however still hold the patient data which was shared with us before you registered the Type 1 Opt-out.
If you do not want NHS Digital to share your identifiable patient data (personally identifiable data in the diagram above) with anyone else for purposes beyond your own care, then you can also register a National Data Opt-out. There is more about National Data Opt-outs and when they apply in the National Data Opt-out section below.
One Health and Care – One record for better health and care. Integrated Health and Care Record for Staffordshire and Stoke-on-Trent
What is One Health and Care?
One Health and Care is a confidential digital shared care record for people living in Staffordshire and Stoke-on-Trent. One Health and Care brings data together from the different organisations involved in health and social care. It allows doctors, nurses and other registered health and social care professionals directly involved in patient/client care to view relevant information in order to provide better and safer care. The One Health and Care system go live begins in January 2020.
When a patient/client visits any of the organisations listed below, or use services provided by them, staff directly involved in their care will have access to the important information from health and social care records.
• Staffordshire and Stoke-on-Trent GP practices
• University Hospitals of North Midlands NHS Trust
• University Hospitals of Derby and Burton NHS Foundation Trust
• Midlands Partnership NHS Foundation Trust
• North Staffordshire Combined Healthcare NHS Trust
• Staffordshire County Council (Social Care)
• Stoke-on-Trent City Council (Social Care)
• Continuing Healthcare services
• West Midlands Ambulance Service
The diagram below illustrates all parties involved and how data will flow from local systems to One Health and Care (CareCentric).
Opt Out Form
Your Data Matters to the NHS
Information about your health and care helps us to improve your individual care, speed up diagnosis, plan your local services and research new treatments. The NHS is committed to keeping patient information safe and always being clear about how it is used.
How your data is used
Information about your individual care such as treatment and diagnoses is collected about you whenever you use health and care services. It is also used to help us and other organisations for research and planning such as research into new treatments, deciding where to put GP clinics and planning for the number of doctors and nurses in your local hospital. It is only used in this way when there is a clear legal basis to use the information to help improve health and care for you, your family and future generations.
Wherever possible we try to use data that does not identify you, but sometimes it is necessary to use your confidential patient information.
You have a choice
You do not need to do anything if you are happy about how your information is used. If you do not want your confidential patient information to be used for research and planning, you can choose to opt out securely online or through a telephone service. You can change your mind about your choice at any time.
Will choosing this opt-out affect your care and treatment?
No, choosing to opt out will not affect how information is used to support your care and treatment. You will still be invited for screening services, such as screenings for bowel cancer.
What do you need to do?
If you are happy for your confidential patient information to be used for research and planning, you do not need to do anything.
To find out more about the benefits of data sharing, how data is protected, or to make/change your opt-out choice visit www.nhs.uk/your-nhs-data-matters
Download a copy of the patient leaflet
Data Sharing Opt-Out
As a patient, you can choose if data from your health records is shared for research and planning purposes.
Your health records contain confidential patient information, which can be used to help with research and planning. If you would like this data sharing to stop, you can opt out of this yourself or on behalf of someone else (for example, if you are a parent or guardian of a child under the age of 13).
Note: Your choice will only apply to the health and care system in England. This does not apply to health or care services accessed in Scotland, Wales or Northern Ireland.
What confidential patient information is:
Two types of information join together to become confidential patient information. This is information that:
- can identify you
- says something about your health care or treatment
One example can include your name and address (identifies you) along with what medicine you take (health care or treatment). Identifiable information on its own is used by health and care services to contact patients and this is not confidential patient information.
How we use your confidential patient information:
Your individual care
Health and care staff may use your confidential patient information to help with your treatment and care. For example, when you visit your GP, they may look at your records for important information about your health.
Research and planning
Confidential patient information is also used to:
- plan and improve health and care services
- research and develop cures for serious illnesses
Where you have a choice:
You can stop your confidential patient information being used for research and planning. Your confidential patient information will still be used for your individual care- any choice you make will not change this.If you decide to Opt-Out:
If you would prefer that your information is NOT shared for research and planning purposes you can Opt-Out in one of three ways:
Online at: www.nhs.uk/your-nhs-data-matters
By Telephone: 0300 3035678
By Post: Please visit the Practice and we will be happy to provide you with the relevant forms
The Practice cannot ‘Opt-Out’ on a patients behalf.
All of the information outlined in this letter has been obtained via the www.nhs.uk/your-nhs-data-matters website- if you require this information in any other languages or formats, please visit:
If you require any further information on the matters outlined in this letter, please contact the Practice to discuss on 01538 399008.